Hirschsprung’s Disease – Solving the Puzzle

Hirschsprung’s Disease – Solving the Puzzle by Nicole B. Murphy is a comprehensive exploration of Hirschsprung’s Disease, published by Hirschsprungs Help Incorporated on February 14, 2011. This 170-page edition, written in English, presents the author’s personal journey and insights gained while navigating the challenges associated with the condition, particularly through the experiences of her son, Kellen.
Readers will find a detailed account of the unexpected difficulties that can arise with Hirschsprung’s Disease, including enterocolitis and post-operative complications. The book aims to provide valuable information and support for families affected by this condition, drawing on the author’s research and the encouragement from the Hirschsprung’s Support Network. Additionally, a portion of the proceeds from each sale will contribute to the Hirschsprung’s Disease Gift Fund at Johns Hopkins University, further emphasizing the book’s commitment to supporting the community.
Official synopsis Publisher
Our son Kellen was born with Hirschsprung’s Disease. When Kellen was first diagnosed with HD, all we were given was a small brochure on the topic. While it had basic information in it about the disease, I wanted to know more. As my husband and I were finding out, Hirschsprung’s Disease had a lot of surprises in store for us. We weren’t prepared for the constant bouts of enterocolitis, nor for the terrible diaper rashes Kellen suffered from after his pull-through operation. Through my research, I discovered many things about Hirschsprung’s Disease. My friends at the Hirschsprung’s Support Network have inspired me to complete the book and have given me much needed advice. It is my hope that this book will help others living with Hirschsprung’s Disease. Part of the profits from every book sold will go to the Hirschsprung’s Disease Gift Fund at Johns Hopkins University.
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