Dancing in the Storm
Dancing in the Storm by Amie Darnell Specht, published by Penguin on February 6, 2024, is a 224-page work in English that explores the life of a young girl facing significant health challenges. The narrative follows Kate, a twelve-year-old from Baton Rouge, whose life takes a dramatic turn when she develops a mysterious shoulder pain. This condition leads to the diagnosis of Fibrodysplasia Ossificans Progressiva, a rare genetic disorder that alters her reality and requires her to adapt to new circumstances.
Readers will find a heartfelt and candid portrayal of Kate’s journey as she learns to navigate life with FOP, supported by her family, friends, and a pen pal named Amie, who shares similar experiences. The story delves into themes of resilience and the importance of community, while also addressing topics related to health, disabilities, and the pursuit of joy despite adversity. This edition offers an illuminating perspective on living with a rare condition, drawing inspiration from real-life experiences.
Official synopsis Publisher
In the tradition of Out of My Mind and Rules, and inspired by the co-author’s own life, this is a heartfelt, candid, and illuminating story of a girl learning to live fully with a rare genetic disorder.
Kate’s life in Baton Rouge, full of friends and family, gymnastics and Girl Scouts, is just plain great. But then, at the age of twelve, she suddenly develops a mysterious shoulder pain that won’t go away . . . and that will change her life forever. It turns out that Kate has one of the rarest genetic disorders in the world, Fibrodysplasia Ossificans Progressiva. FOP causes bone to form in places in the body where it shouldn’t, and there’s no cure yet. Kate will need to learn how to live with this difficult new reality, helped by those close to her and by a new pen pal named Amie, who has been living with FOP for years.
Drawing upon much of Amie Specht’s own experiences with FOP, she and esteemed novelist Shannon Hitchcock have created a poignant, eye-opening, and uplifting story of finding courage and joy in the face of adversity.
Author
Publisher
Topics
FAQ
What is “Dancing in the Storm” about?
Who is the author of “Dancing in the Storm”?
When was “Dancing in the Storm” published?
What is the ISBN for “Dancing in the Storm”?
What are the book details (language, pages, edition)?
